NF Surgery Seminar 2019

May 5, 2019

New York, New York


NF Surgery Seminar NYC logo.

Millenium Hilton New York Downtown
55 Church Street
New York, NY 10007

The NF Surgery Seminar is an educational seminar for patients with neurofibromatosis (NF) and for the medical professionals who treat them. Surgery is still the mainstay of treatment for most patients who require intervention. Although this is true of both Type 1 and Type 2 NF, the majority of the discussions will apply to NF1 patients. The conference will be primarily focused on the surgical treatments available. Details of current options will be discussed along with preoperative and postoperative considerations, candidacy for surgery, risks, and anticipated results.

There are several unique additions to the NF Surgery Seminar this year, including a special presentation on the treatment of central nervous system tumors (brain and spine), presented by Dr. Moise Danielpour from the Department of Neurosurgery at Cedars Sinai Medical Center in Los Angeles.

In addition, we are excited to have Dr. Hubert Weinberg from Mount Sinai Hospital in New York discuss his take on the treatment of NF tumors. As a special feature, we will be holding a Q&A session with Drs. Panossian and Weinberg. This is a unique opportunity for your questions to be answered regarding surgery for the treatment of NF.

Clinical Director of the Neurofibromatosis Therapeutic Acceleration Program (NTAP) at Johns Hopkins, Dr. Jaishri Blakeley, will provide an overview of NF and current research and trials. Consultation with Dr. Blakeley will be available as part of our new Breakout Sessions.

In addition, individual appointments are available with Dr. Panossian for a brief consultation regarding your surgical options. You must indicate your interest on the registration form below to participate.

The NF Surgery Conference is a unique opportunity to educate patients and medical professionals on the available treatments and timing required for optimal results. Dr. Andre Panossian is board-certified plastic and reconstructive surgeon with a background in neurofibromatosis, peripheral nerve surgery, facial paralysis, and pediatric plastic surgery. He has been featured on Good Morning America, The Doctors, The Los Angeles Times and KTLA 5 News Los Angeles. As mentioned, he is joined this year by Dr. Hubert Weinberg, a world-renowned plastic surgeon with expertise in the treatment of cutaneous NF.

Schedule of Events

8:00-9:00 am Breakfast for Registered Attendees
9:00 am Welcome
9:05 am Introduction and Update on Research for NF1 and NF2
9:35 am Surgical Excision for Neurofibromatosis
10:05 am BREAK
10:20 am Electrodesiccation for Neurofibromatosis
10:45 am Central Nervous System Tumors in Neurofibromatosis
11:15 am Patient Engagement and Advocacy
11:45 am Q&A with Drs. Panossian and Weinberg
12:15 pm Adjourn
12:30-3:30 pm Break – Out Sessions: Individual Appointments with Dr. Panossian; Consultation with Dr. Blakeley; Consultation with Pam Knight

Join us at the NF Surgery Seminar NYC to learn more about the latest treatment options for neurofibromatosis!

Registration includes:

  • Continental breakfast prior to conference
  • Conference Activities – speakers and/or individual appointments
  • Parking not included. We urge participants to take a taxi to the conference center, if they are not staying at the hotel.

For Questions, contact us at 800-958-3778.
This meeting is complimentary, but due to limited space, you MUST REGISTER below to attend!

NF Surgery Seminar 2019 Registration Form

Due to seating limitations, you MUST complete all required fields to attend!


Dr. Panossian is a board-certified plastic and reconstructive surgeon with expertise in neurofibromatosis, facial paralysis, vascular anomalies, and cosmetic surgery. He began his career treating kids with NF at Children's Hospital Los Angeles. He currently is on the Board of Directors for Mending Kids International and is an attending physician at Shriners Hospital for Children.


Dr. Hubert Weinberg headshot.


Dr. Weinberg is a New York-based board-certified plastic surgeon specializing in neurofibromatosis treatment. In recognition of his contribution to the treatment of NF, Dr. Weinberg received the prestigious 2009 Children's Humanitarian Award from the Children's Tumor Foundation. He presently serves as an attending physician at Mount Sinai Hospital in New York and is a Clinical Professor of Plastic Surgery at Icahn School of Medicine at Mount Sinai.


Dr. Moise Danielpour headshot.

Dr. Danielpour is a member of the international prenatal neurology and neurosurgery conference team as well as a member of the Cedars-Sinai International Skeletal Dysplasia Program. He is a world-renowned investigator and neurosurgical expert on Congenital Malformations of the Central Nervous System and acquired neurosurgical diseases such as Skeletal Dysplasia, Hydrocephalus, Chiari Malformations, brain tumors, Craniosynostosis and Vascular Malformations.


Headshot Dr. Jaishri Blakeley

Dr. Blakeley is an Associate Professor of Neurology, Neurosurgery and Oncology at the Johns Hopkins University School of Medicine and the Director of the Johns Hopkins Comprehensive Neurofibromatosis Center. She is an expert in clinical trial design and the development of translational studies to advance new therapies in rare neuro-oncologic diseases.