Neurofibromatosis Conference 2018

Conference Date: July, 14, 2018

JW Marriott Santa Monica Le Merigot
1740 Ocean Avenue
Santa Monica, CA 90401

The NF Surgery Conference is a half-day educational seminar for patients with neurofibromatosis (NF) and for the medical professionals who treat them. Surgery is still the mainstay of treatment for most patients who require intervention. Although this is true of both Type 1 and Type 2 NF, the majority of the discussions will apply to NF1 patients. The conference will be primarily focused on the surgical treatments available. Details of current options will be discussed along with preoperative and postoperative considerations, candidacy for surgery, risks, and anticipated results.

The conference will also provide an overview of neurofibromatosis by Dr. Tena Rosser from Children’s Hospital Los Angeles Neurofibromatosis Clinic, current cutting-edge research at UCLA by Dr. Alice Soragni, and an expert lecture by the world-renowned Dr. Vincent Riccardi who has dedicated his career to the study and betterment of neurofibromatosis patients the world over. TheNF Surgery Conference is a unique opportunity to educate patients and medical professionals on the available treatments and timing required for optimal results. There will also be a Question & Answer Patient Forum after the lectures for current and former patients to discuss their experiences openly with other members of the community.Dr. Andre Panossian is board-certified plastic and reconstructive surgeon with a background in neurofibromatosis, peripheral nerve surgery, facial paralysis, and pediatric plastic surgery. He has been featured on Good Morning AmericaThe DoctorsThe Los Angeles Times and KTLA 5 News Los Angeles. He is also a member of the Board of Directors for Mending Kids and the Gondobay Manga Foundation.

Children are welcome to join us. There will be a special “kids’ camp” set up to keep them happy and busy while parents participate in the conference. More details about the Kids’ Camp will be included in your registration packet if you would like to enroll your child. (Licensed childcare agency)

Schedule of Events

7:30 - 8:30 AMBreakfast for Registered Attendees and SpeakersCAFÉ PROMENADE
8:30 AMWelcome Dr. Andre PanossianSanta Monica Meeting Room
8:45 AMOverview of NF Dr. Tena RosserSanta Monica Meeting Room
9:15 AMNF Surgery Dr Andre PanossianSanta Monica Meeting Room
10:30 AMNF Discussion Dr. Vincent RiccardiSanta Monica Meeting Room
11:00 AMNR Research Dr. Alice SoragniSanta Monica Meeting Room
11:30 AMPatient Panel Q&ASanta Monica Meeting Room

Join us at the NF Surgery Conference to learn more about the latest treatment options for neurofibromatosis!

Registration includes:

  • Breakfast prior to conference with group
  • Conference Activities – speakers/patient panel
  • Parking at Hotel (Valet) – let them know you are with the NF Conference

For Questions Contact: Deb Henderson 310-699-7837
To Register for the Conference (due to limited space, you must register to attend!) fill out the form below:

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Dr. Andre Panossian

Dr. Panossian is a board-certified plastic and reconstructive surgeon with expertise in neurofibromatosis, facial paralysis, vascular anomalies, and cosmetic surgery…

Picture of Dr. Tena Rosser, M.D.

Dr. Tena Rosser

Dr. Tena Rosser is the Acting Chair of the Division of Neurology at the Children’s Hospital Los Angeles which is affiliated with the USC Keck School of Medicine She is an Associate Professor of Pediatrics and Neurology.

Picture of Dr. Vincent Riccardi

Dr. Vincent Riccardi

Dr. Riccardi is an extensively experienced medical geneticist who was attracted to human genetics while earning his BA degree from UCLA in 1962.

picture of Alice Soragni

Dr. Alice Soragni

Alice Soragni, PhD, graduated cum laude from the University of Bologna, Italy, in 2007 with a master degree in Biomolecular Biotechnology and subsequently obtained a PhD in Physical Chemistry from the ETH of Zurich, Switzerland, in 2011.